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Information About Primary Immunodeficiencies
Primary Immune Deficiency Foundation »
The Immune Deficiency Foundation (IDF) is the national non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education. (www.primaryimmune.org)
Patient and Family Handbook for Primary Immunodeficiency Diseases.
The Jeffrey Modell Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of primary immunodeficiencies. (www.jmfworld.org)
Patient/Family advocacy group to provide information and resources to patients and family members who have Hereditary Angioedema (HAE) . Hereditary Angioedema (HAE) is a very rare condition. Symptoms of HAE include edema (swelling) in various body parts including, but not limited to, hands, feet, abdomen and airway. (www.haea.org)
This Lupus Foundation of America is committed to solving the mystery of Lupus. For help, information and resourses visit : (http://www.lupus.org/)
Rheumatoid Arthritis- RA- »
Rheumatoid Arthritis ( RA) is a chronic disease that causes pain, stiffnes and swelling and loss of joint function. This is an autoimmune disease that occurs when your immune system mistakingly attacks healthy tisse.
For information regarding what RA is, treatment options, how to live with RA and more:( http://www.ra.com/what-is-ra.aspx)
American Academy of Allergy, Asthma, and Immunology (AAAAI) »
AAAI is a professional organization for physicians who treat patients with allergies, asthma and immunologic disorders. The organization provides a worldwide referral system for physicicians in various geographical regions. (www.aaaai.org)
International Nursing Group for Immunodeficiencies (INGID) »
The purpose of INGID is to improve and extend the quality of nursing care of patients with primary immunodeficiencies and to increase the awareness and understanding of primary immunodeficiencies amongst nurses. (www.ingid.org)
New Patient Forms
* It is extremely important and necessary that you bring, fax, or mail all records from all of your doctors, including office notes, xrays/radiology reports/scans and especially labs to your first appointment. Please make sure your doctor's office has sent them prior to your appointment.