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Information About Primary Immunodeficiencies
Primary Immune Deficiency Foundation »
The Immune Deficiency Foundation (IDF) is the national non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education. (www.primaryimmune.org)
Patient and Family Handbook for Primary Immunodeficiency Diseases.
The Jeffrey Modell Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of primary immunodeficiencies. (www.jmfworld.org)
Patient/Family advocacy group:
American Academy of Allergy, Asthma, and Immunology (AAAAI) »
AAAI is a professional organization for physicians who treat patients with allergies, asthma and immunologic disorders. The organization provides a worldwide referral system for physicicians in various geographical regions. (www.aaaai.org)
International Nursing Group for Immunodeficiencies (INGID) »
The purpose of INGID is to improve and extend the quality of nursing care of patients with primary immunodeficiencies and to increase the awareness and understanding of primary immunodeficiencies amongst nurses. (www.ingid.org)
Especially for Youth
Band-aids and Blackboards »
Band-aids and Blackboards ia a Web site about growing up with medical problems. The site helps people understand what it is like, from the perspective of children and teens. There are seperate areas for kids, teens and adults. (www.lehman.cuny.edu/faculty/jfleitas/bandaides)
New Patient Forms
* It is extremely important and necessary that you bring, fax, or mail all records from all of your doctors, including office notes, xrays/radiology reports/scans and especially labs to your first appointment. Please make sure your doctor's office has sent them prior to your appointment.